still standing...still trusting...still looking up...still loved...

well it happened...tonight while we were at Mass...right after Miss Courtney received Communion...around 5:45 p.m...while I was praying the Anima Christi with her as we do every time she receives Our Lord...her hands curled in...her legs stiffened...her eyes rolled back...and the seizure came...rolling over her like a freight train...two loooooong minutes of jerking, choking, gagging horrific, lips turning white...and then just as quickly as it started...it was over...she took a deep breath and turned her head toward me and smiled...letting me know it was all OK...it's not what we wanted but it's what will be...we will continue with the med draw down plan for now...if more seizures come than we may have to stop decreasing the Depakote...only time will tell...Mama did not freak out...probably because I had just received Our Lord myself...Daddy did not freak out...it will be what it will be...she is still smiling and yelping and giving us what for...but we will re-start that seizure-free record clock over...four hours and counting seizure free...thank you for being there to pray...and hug and encourage us with your words...we are still standing...still trusting in HIS plan for our girl...still looking to the Cross for our help is on the Lord...still loving our daughter as she fights the good fight...and being loved in return by Our Savior...knowing in the end...she is HIS...and so are we...

St Augustine said:
"If God seems slow in responding, it is because He is preparing a better gift. He will not deny us. God withholds what you are not yet ready for. He wants you to have a lively desire for His greatest gifts. All of which is to say, pray always and do not lose heart."

St France deSales said:
"Do not look forward in fear to the changes of life; rather look to them with full hope that as they arise, God, whose very own you are, will lead you safely through all things; and when you cannot stand it, God will carry you in His arms. Do not fear what may happen tomorrow; the same everlasting Father who cares for you today, will take care of you then and every day. He will either shield you from suffering or will give you unfailing strength to bear it. Be at peace and put aside all anxious thoughts and imaginings."

and so we shall...blessings to all...

Stand

by Britt Nicole

I wake up to another day

I don't know if I can face

All the fears, that is tearing me down

Yea, I'm trying to be brave

But I'm afraid, about to fade

I wanna stand but I don't know how

I look up and all I see is Your love holding me

When I feel like giving up

When my heart is hurt too much

Feels like I've reached the end

No one will tell me wrong

This battle will be won

When I've done all I can

I stand stand stand

I stand stand stand

Some days I lose my place

It's a fight to keep my faith

But You are with me, I am not alone, no

But all around my work is late

Toss like an ocean wave

You are my rock and the storm clouds blow

I look up and all I see is Your love holding me

When I feel like giving up

When my heart is hurt too much

Feels like I've reached the end

No one will tell me wrong

This battle will be won

When I've done all I can

I stand stand stand

I stand stand stand

On Your promise, I will stand

Oh look the ground is sinking sand

On Your promise, I will stand

Oh look the ground is sinking sand

Sinking sand oh who woooh

It's sinking sinking, yea ye

When I feel like giving up

When my heart is hurt too much

Feels like I've reached the end

No one will tell me wrong

This battle will be won, yea yea

So I'll stand stand stand

I stand stand

I'll stand stand stand